Partnerships and Coolaborations - Lynch Syndrome Awareness and Education

Partnerships & Collaborations

At Lynch Syndrome Awareness and Education, we believe collaboration is essential to our mission. By partnering with like-minded organizations, we strengthen our collective ability to raise awareness, expand education, and provide critical resources to families and healthcare communities.

Working together allows us to build a powerful support network that not only informs, but inspires action. Our shared commitment to improving the lives of those affected by Lynch Syndrome ensures that no one has to navigate this journey alone.

Jaqueline Rush Lynch Syndrome Cancer Foundation

Joan and Allen Rush

The Jacqueline Rush Foundation was formed by Joan and Allen Rush following the loss of their daughter, Jacqueline, at the young age of 23. She was diagnosed with colorectal cancer at the age of 20, and during her treatment it was discovered that the underlying cause of her cancer was an inherited genetic condition known as Lynch Syndrome. Jacqueline had symptoms in high school, but as a young healthy person, her symptoms were initially dismissed and misdiagnosed. Having Lynch Syndrome awareness and proper cancer screening could have saved Jacqueline’s life. Our mission is to ensure that no other families lose a loved one due to undetected Lynch Syndrome.

Our goal is to save lives by improving public and medical community awareness of Lynch Syndrome. We also provide support, education and resources to those with Lynch Syndrome and their families. We’re building a community so you are never alone!

. jrushfoundation.org

My Faulty Gene

Kathy Baker

My Faulty Gene is a national nonprofit organization which provides information and assistance to underrepresented, uninsured, and underinsured individuals whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation.

We believe that everyone in need of genetic testing should have access to it, including family members of individuals with a known mutation. https://myfaultygene.org/

JScreen

Jscreen's mission is to ensure every adult in the United States has access to preventive genetic testing and counseling to inform their reproductive options and understanding of their hereditary cancer risks.

Through our innovative platform, we provide consumer-initiated access to genetic testing, empowering individuals to make informed decisions that shape healthier futures. By fostering awareness and education, we aim to make a meaningful impact on the lives of those we serve. https://jscreen.org

Our mission is to improve the lives of individuals and families facing hereditary cancer. Stay up to date on hereditary cancer topics by signing up for our community newsletter. https://www.facingourrisk.org/

https://fightcolorectalcancer.org/

https://precedefoundation.org/

Marisa Stachelski is a colon cancer survivor, BRCA2 previvor, hereditary cancer advocate, and founder and host of BRCA & Beyond. At 37, she was diagnosed with Stage 1 colon cancer, which ultimately led to genetic testing and the discovery that she carries a BRCA2 mutation. That experience, along with her family history of cancer and the risk-reducing decisions that followed, opened her eyes to the emotional and practical realities of living with hereditary cancer risk.

She created BRCA & Beyond to bridge the gap between clinical care and lived experience
through honest conversations with survivors, previvors, advocates, and experts. Her mission is to raise awareness of hereditary cancer, encourage people to understand their family history, and help those navigating genetic risk feel informed, supported, and less alone.

LSAE Interests & Strengths I’d especially love to build on our conversation about bridging the previvor care gap and further educating clinicians on how to better support previvors. It’s something we both understand personally, and I think there is a real opportunity to bring more attention to it together. I’d also love to contribute through BRCA & Beyond, social media, events, awareness initiatives, and the relationships I’ve built with advocates and professionals in the hereditary cancer space. I’m really open to where this partnership can go and excited about finding meaningful ways to
combine our platforms, communities, and shared advocacy.