Advancing Awareness for Lynch Syndrome
Join us in our mission to spread Awareness and Education about Lynch Syndrome
Empowering individuals and the medical community with knowledge and up to date resources to help navigate those living with Lynch Syndrome.
What is Lynch Syndrome?
Lynch Syndrome is one of the most common hereditary cancer syndromes, caused by inherited genetic mutations—most often in the MLH1, MSH2, MSH6, PMS2, or EPCAM genes. About 1 in 279 people carry a Lynch mutation, but more than 95% don’t know it.
This condition greatly increases the risk of developing cancers such as colorectal, endometrial (uterine), ovarian, stomach, bladder, renal pelvis, small bowel, biliary tract, brain, and skin. These often occur in Lynch patients at a younger age than the general population.
How Common Is Lynch Syndrome?
Lynch Syndrome is a hereditary condition that is more common than you think. Unfortunately it is widely unknown. In the United States, estimates show that there are OVER ONE MILLION people who are positive for Lynch Syndrome. The biggest opportunity for awareness lies in the fact that 95% of those people do not know that have this hereditary condition.
Applied Knowledge is Power in Early Detection and Prevention
The most significant aspect of Lynch Syndrome is that it is a genetic condition. If a person inherits a mutation in one of the mismatch repair (MMR) genes, such as MLH1, MSH2, MSH6, or PMS2, they have an increased risk of developing various cancers. However, knowing that one carries this mutation can lead to early detection strategies that drastically improve outcomes.
This website is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Please talk to your healthcare provider about any questions or concerns you may have regarding your health.
Join Us In Our Mission to Spread Awareness and Education for Lynch Syndrome
Your support can make a difference! Whether you choose to donate, volunteer, participate in clinical trials, research studies, or help spread the word, every action counts in our mission to raise awareness about Lynch Syndrome. Please join us in providing awareness and education. Together, we can make a difference.